Well, I’m officially past the half way mark! Only 2 days left to go of my 5 days of Lemtrada infusions! I was overjoyed today that my IV was still good this morning, so no new needles! The day starts so much better when you don’t feel like a pin cushion!
I had a new nurse today, Monica, who is awesome. She’s so kind and compassionate and it’s evident that she really wants to make sure I’m comfortable and doing ok! I’ll have her as my nurse tomorrow as well, so I’m happy about that!
Today passed by really quickly, probably because I slept for almost the entire day! They warned my that I may have trouble sleeping because of the steroids, but that hasn’t been the case for me at! I’m sleeping all night and for several hours during the day. No need for the sleeping pills they prescribed to help get rest. However, the steroids are causing me to retain water, so I look like I’ve gained a good 5lbs.
I also kept my winning streak alive as I dominated Clark in Dutch Blitz. Of course, he’s still blaming his loss on the fact that I’m on “performance enhancing drugs.” Whatever helps you sleep at night Clarky! Clark’s been making friends with the other two guys who are getting infusions. The one guy, Chazel, calls Clark “the cool guy” and asked to get a selfie with him today. I love it.
For the most part I had another great day! During the one hour observation period at the end of the day, I developed some slight tremors, but they pretty much passed within the hour. At the end of each day, after the Lemtrada is finished dripping, I have to stay to be monitored to make sure everything is A-OK. So far, so good!
Now that I’m home for the night, I also have a slight heaviness in my chest, but they warned me that that was pretty common. If there are any changes I’ll head over the emergency room, but I’m hopeful that it will pass. Keep praying though! I can use it! I had my last dose of steroids today and the nurse warned me that many people experience more severe side effects (nausea, rashes, discomfort) once the steroids stop, but I’m still believing that prayer is stronger than steroids! Right?
To replace the steroids, tomorrow I will begin to receive Gravol and Benadryl by IV to manage some symptoms that may arise. I’ve been warned that these will knock me out, so I’m expecting to sleep the day away!
Thanks again for your support and prayers. Clark and I both absolutely love reading all your comments, messages and encouragement. There is something special about knowing that a massive community is backing you! Thank you!!! Only 2 days to go!